If you have been one of the lucky people who know or have met a child with Progeria, you know how incredibly special they are. Although Progeria causes them to endure many aging-related conditions such as heart disease, strokes, arthritis and osteoporosis, remarkably their intellect is unaffected. And despite startlingly physical changes in their young bodies, these extraordinary children are recognized for their intelligence, wit and gentle nature.
Several families have created beautiful web sites devoted to their children, giving you insight into their daily lives, devotion to the children, and their hopes and dreams for a cure.
Learn all about this beautiful little boy, who was diagnosed in March 2007 at 5 months of age. His family and friends have created PRF’s Southwest Michigan chapter, with lots of exciting events to raise awareness and funds for Progeria research.
Hayley's Progeria Page
Meet Hayley from England, one of the very special children with Progeria who
has captured the hearts of many. Hayley has won the prestigious Children of
Courage Award and appeared in several documentaries and other media stories
about Progeria. She is also featured on a CD, Voices of Tomorrow, now on sale through our store.
Enjoy this beautiful video and biography of Josiah "Bubby" (nick-named because his little sister couldn't pronounce "brother"!) – he is quite a character!
Have fun reading Kaylee's journal, sign her guestbook and learn all about this wonderful little girl whose family and friends are all pitching in to support Progeria research. " Kaylee is such a happy little girl its hard to feel anything but thankful God gave us such a beautiful and happy child" write her parents.
This site was created in memory of Kristian, who passed away in March 2006. His parents have written an informative, loving chronicle of his too-short life of 3 ½ years, and have filled the site with beautiful pictures of this wonderful little boy.
Lindsay, who turned 2 in February 2006, was diagnosed with Progeria when she was 5 months old, but it doesn't stop her! She's a bundle of energy and all smiles. Visit her web site to see lots of fun pictures and learn more about Lindsay's loving parents and supportive family: "We love her with all our hearts and pray without ceasing that a cure is found".
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Meet Michiel and Amber from Belgium on this multi-lingual site made with love by their parents. See lots of beautiful photos of these siblings with their friends, and learn about the parents' experiences living with Progeria, and the life of this wonderful boy and girl who brings so much joy to all who know them.
Lovingly designed and written by Ory's mom, this site has lots of information on this adorable boy, who passed away in December 2006 at the age of 10. Get to know Ory through the many pictures and video and audio clips – he was truly special!
Zach Pickard was diagnosed with Progeria in December 2007 at the age of 11 months. His family and their friends took immediate action, holding fundraisers, speaking with the media and organizing a Kentucky chapter, to help find a cure for Zach and the other children with Progeria. Zach’s contagious energy and smile are what motivates this group – read all about Zach and his supporters.